Monday, March 25, 2013

This is a story about a boy...

his name is Max. Now Max has had a rough go at things his whole two years of life....but has continued to be the little engine that could. One day, his mom was fed up with not getting any answers so she took him to a children's specialty hospital for extra help and they found a large mass which they removed immediately. Around three weeks after surgery, all of a sudden this little boy started developing in ways that had his parents saying, "Who is this kid?" He began craving attention, craving being held, craving being soothed from his mom when upset, craving to try and sit or stand up to look around...it was simply astounding for his family and they almost couldn't believe their eyes. But one of the most joyful developments for his mom and dad was his cognitive growth...his new found curiosity and intrigue. One day his mom sat him on the couch to practice sitting after his bath and he played with his favorite cupcake...
Then, he sat his cupcake on the arm rest of the couch that he realized was next to him. After that, he looked straight at his mom and pushed the cupcake until it made a loud thud. Max sat there for a little bit before curiosity got the best of him. So he wiggled on over to the edge of the couch...
and his little intrigue was rewarded when he eventually spotted the cupcake...
and the funniest part for his mom was when he honestly thought he could reach and wave his little hand hard enough to actually reach his cupcake...
When Max realized he wasn't going to get a hold of the cupcake, his mom rewarded his attempt at problem solving with helping him to the floor to claim his favorite toy!

Friends, Max is doing AMAZING!!! Yes...he still is medically fragile, on oxygen, has a continuous feed through his G-J tube, can only army crawl, is severely developmentally delayed...but he has had an incredible developmental growth spurt lately! Our best educated guess is that his body must have been functioning on a stabilize the pain mode that once the pain was gone, his body has been able to focus on developing.
I have even had a few special mommy moments where he has been crying so hard that he won't calm down for his nurse or Daniel...and then when I wrap him in my arms, he immediately soothes to my touch and voice. I have waited TWO LONG YEARS for a mommy moment like this with my son...TWO YEARS friends!!! Sweet moments like this have helped us bond together in ways I always wondered if they could ever happen...
To be honest, he has gotten so touchy that if anyone is near him he believes that he should be snuggling in their lap :). While Daniel and I are beaming and can hardly hold him enough...I am starting to have a bit of trouble getting anything done when he is out of bed playing in the living room! I'm thinking that even though it means a few things may get behind around the house...this is by far a blessing of a challenge to have! 

6 comments:

  1. This is so great, love reading your blogs. You have an amazing family.

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  2. This melts my heart because I am so excited everytime I read or hear of how well Max is doing, but I am also overjoyed at the happiness this has brought your family, especially you because I long for those "mommy moments"!

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  3. So wonderful! He is so precious, and nothing beats those "mommy moments"

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  4. So happy for you! My eyes are overflowing along with my heart! Yeah Max! And yeah for hopefully many more "Mommy Moments!"

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